{"id":35650,"date":"2026-02-09T10:06:29","date_gmt":"2026-02-09T08:06:29","guid":{"rendered":"https:\/\/ticsalutsocial.atoom.space\/noticia\/catalunya-defensa-a-helsinki-una-infraestructura-de-dades-de-salut-centrada-en-la-persona\/"},"modified":"2026-02-09T10:34:29","modified_gmt":"2026-02-09T08:34:29","slug":"catalunya-defensa-a-helsinki-una-infraestructura-de-dades-de-salut-centrada-en-la-persona","status":"publish","type":"noticia","link":"https:\/\/ticsalutsocial.atoom.space\/en\/noticia\/catalunya-defensa-a-helsinki-una-infraestructura-de-dades-de-salut-centrada-en-la-persona\/","title":{"rendered":"Catalonia outlines its approach to people centred health data in Helsinki"},"content":{"rendered":"\n

Joan Guanyabens<\/strong>, director of the TIC Salut i Social Foundation, showcased Catalonia\u2019s experience in health data management at the Radical Health Festival<\/a>, held last January in Helsinki, Finland. Speaking at a plenary session about upgrading data infrastructures to realise the full Potential of the European Health Data Space (EHDS), alongside international experts, Guanyabens argued for the need for strong, well regulated and people centred digital infrastructures to improve health outcomes and promote equity across the system.<\/strong><\/p>\n\n\n\n

He opened his address with a clear message: digital health can only be considered real progress when it is built on trustworthy data, shared knowledge and public oversight<\/strong>. In a context shaped by fake news and the growing concentration of power among large technology companies that control citizens\u2019 data, he stressed the importance of digital sovereignty and European regulation to ensure that data and technological innovation serve the common good and strengthen democratic values.<\/p>\n\n\n\n

Guanyabens, who is also President of the European Health Telematics Association (EHTEL),<\/a> went on to highlight Catalonia\u2019s commitment to treating health information systems as a critical national infrastructure<\/strong>. This approach is grounded in open standards, sovereign citizen<\/strong> of personal data and clear governance models<\/strong>, with the aim of improving population health, ensuring the sustainability of the health system and enhancing the experience of both citizens and healthcare professionals.<\/p>\n\n\n\n

He illustrated this vision with several flagship initiatives developed in Catalonia, including the Yellow Button<\/a>, which enables patients to download a patient summary anywhere in Europe; La Meva Salut<\/a>, the digital platform that provides access to shared electronic health records; and the Health AI Programme<\/a>, designed to foster the development and deployment of artificial intelligence within the Catalan Health System.<\/p>\n\n\n\n

In closing, he underlined that alignment with the European Health Data Space requires a gradual and coordinated transition towards new models of data governance and data sharing, built on trust and firmly focused on placing people at the centre of digital health systems.<\/p>\n\n\n\n

The Foundation at Radical Health<\/strong><\/h2>\n\n\n\n

The TIC Salut i Social Foundation took part in the congress as one of its contribution partners<\/a>, with a strong institutional presence. Carme Pratdep\u00e0dua<\/strong>, Head of Digital Assets for Citizens, and Carla \u00c1lvarez<\/strong>, Head of Public Programmes, contributed to the session \u201cThe Yellow Button: Innovating for Everyday Life with Patient Access\u201d, where they presented Catalonia\u2019s role in the European xShare project<\/a>.<\/p>\n\n\n\n

The Foundation\u2019s delegation also included Anna Benavent<\/strong>, Director of Digital Health Strategy at Hospital Parc Taul\u00ed, who spoke at the session \u201cEHR Algorithm Communication\u201d.<\/p>\n\n\n\n

<\/p>\n","protected":false},"author":12,"featured_media":35648,"menu_order":0,"template":"","meta":{"_acf_changed":true,"inline_featured_image":false},"etiqueta":[],"tipus":[1175],"topic":[122],"class_list":["post-35650","noticia","type-noticia","status-publish","has-post-thumbnail","hentry","tipus-fundacio-en","topic-hot-news"],"acf":{"finalitzat":false,"tipus_plantilla":"objectius","template_objectius":{"cont_principal":"","imatge":false,"cont_seguent":{"titol":"","contingut":""},"seccio_llistat":{"titol":"","llistat":false},"objectius":{"titol":"","objectius":false},"documents":false},"autor":"","imatge":35645,"textos_destacats":[{"texte":"The director of the TIC Salut i Social Foundation presented Catalonia\u2019s health information systems strategy at the Radical Health Festival."}],"documents":false},"yoast_head":"\nCatalonia outlines its approach to people centred health data in Helsinki - Fundaci\u00f3 TIC Salut i Social<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ticsalutsocial.atoom.space\/en\/noticia\/catalunya-defensa-a-helsinki-una-infraestructura-de-dades-de-salut-centrada-en-la-persona\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Catalonia outlines its approach to people centred health data in Helsinki - Fundaci\u00f3 TIC Salut i Social\" \/>\n<meta property=\"og:description\" content=\"Joan Guanyabens, director of the TIC Salut i Social Foundation, showcased Catalonia\u2019s experience in health data management at the Radical Health Festival, held last January in Helsinki, Finland. 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