{"id":29407,"date":"2024-12-11T14:17:36","date_gmt":"2024-12-11T12:17:36","guid":{"rendered":"https:\/\/ticsalutsocial.atoom.space\/noticia\/infografia-sobre-el-projecte-unicas-datencio-integral-a-les-malalties-minoritaries-pediatriques-a-espanya\/"},"modified":"2024-12-11T14:38:21","modified_gmt":"2024-12-11T12:38:21","slug":"infografia-sobre-el-projecte-unicas-datencio-integral-a-les-malalties-minoritaries-pediatriques-a-espanya","status":"publish","type":"noticia","link":"https:\/\/ticsalutsocial.atoom.space\/es\/noticia\/infografia-sobre-el-projecte-unicas-datencio-integral-a-les-malalties-minoritaries-pediatriques-a-espanya\/","title":{"rendered":"Infograf\u00eda sobre el proyecto \u00daNICAS de atenci\u00f3n integral a las enfermedades minoritarias pedi\u00e1tricas en Espa\u00f1a"},"content":{"rendered":"\n<p>El proyecto \u00daNICAS, liderado por el Ministerio de Sanidad, ha publicado una <a href=\"https:\/\/ticsalutsocial.atoom.space\/wp-content\/uploads\/2024\/11\/Infografia_UNICAS_vF.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">infograf\u00eda para dar a conocer sus principales objetivos y puntos clave<\/a>. \u00daNICAS trabaja para crear un <strong>ecosistema estatal de alianzas para la mejora de los pacientes pedi\u00e1tricos con enfermedades minoritarias complejas<\/strong> a lo largo de todo su proceso de atenci\u00f3n. El proyecto prestar\u00e1 una atenci\u00f3n integral a los pacientes y sus familias a trav\u00e9s de una red de 30 nodos especializados repartidos por todas las comunidades aut\u00f3nomas y el Instituto Nacional de Gesti\u00f3n Sanitaria (INGESA).<\/p>\n\n\n\n<p>Los nodos del proyecto en Catalu\u00f1a son el <strong>Hospital Sant Joan de D\u00e9u, el Hospital Vall d&#8217;Hebron y el Consorcio de Corporaci\u00f3n Sanitaria Parc Taul\u00ed<\/strong>. Estos nodos estar\u00e1n dotados de herramientas, procesos y protocolos comunes para establecer un modelo de atenci\u00f3n personalizada en red. De este modo, los pacientes con enfermedades pedi\u00e1tricas podr\u00e1n ser atendidos en cualquier nodo de la red como si estuvieran en el centro de referencia de su patolog\u00eda, sin importar d\u00f3nde residan; es decir, viajar\u00e1n los datos y no los ni\u00f1os y ni\u00f1as.<\/p>\n\n\n\n<p><strong>Catalu\u00f1a lidera el desarrollo e integraci\u00f3n tecnol\u00f3gica del proyecto \u00daNICAS<\/strong>. La Fundaci\u00f3n TIC Salut Social es la encargada de ejecutar esta l\u00ednea de acciones, valorar la madurez tecnol\u00f3gica de las comunidades aut\u00f3nomas, definir los requisitos tecnol\u00f3gicos de las herramientas b\u00e1sicas del proyecto, velar por que se desarrollen y desplegar la red de nodos.<\/p>\n\n\n\n<p>El proyecto se enmarca bajo el paraguas del Plan de Atenci\u00f3n Digital Personalizada, financiado por el Plan de Recuperaci\u00f3n, Transformaci\u00f3n y Resiliencia y por los fondos europeos Next Generation.<\/p>\n\n\n\n<p><\/p>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"850\" height=\"72\" src=\"https:\/\/ticsalutsocial.atoom.space\/wp-content\/uploads\/2024\/12\/Imagen-1.png\" alt=\"\" class=\"wp-image-29401\" style=\"width:719px;height:auto\" srcset=\"https:\/\/ticsalutsocial.atoom.space\/wp-content\/uploads\/2024\/12\/Imagen-1.png 850w, https:\/\/ticsalutsocial.atoom.space\/wp-content\/uploads\/2024\/12\/Imagen-1-300x25.png 300w, https:\/\/ticsalutsocial.atoom.space\/wp-content\/uploads\/2024\/12\/Imagen-1-768x65.png 768w\" sizes=\"auto, (max-width: 850px) 100vw, 850px\" \/><\/figure>\n","protected":false},"author":12,"featured_media":29406,"menu_order":0,"template":"","meta":{"_acf_changed":true,"inline_featured_image":false},"etiqueta":[],"tipus":[],"topic":[127],"class_list":["post-29407","noticia","type-noticia","status-publish","has-post-thumbnail","hentry","topic-proyectos"],"acf":{"finalitzat":false,"tipus_plantilla":"objectius","template_objectius":{"cont_principal":"","imatge":false,"cont_seguent":{"titol":"","contingut":""},"seccio_llistat":{"titol":"","llistat":false},"objectius":{"titol":"","objectius":false},"documents":false},"autor":"","imatge":29406,"textos_destacats":[{"texte":"Catalu\u00f1a lidera el desarrollo e integraci\u00f3n tecnol\u00f3gica del proyecto \u00daNICAS."}],"documents":[{"titol_doc":"Infografia \u00daNICAS","document":{"ID":29118,"id":29118,"title":"Infografi\u0301a_U\u0301NICAS_vF","filename":"Infografia_UNICAS_vF.pdf","filesize":221503,"url":"https:\/\/ticsalutsocial.atoom.space\/wp-content\/uploads\/2024\/11\/Infografia_UNICAS_vF.pdf","link":"https:\/\/ticsalutsocial.atoom.space\/es\/noticia\/infografia-sobre-el-projecte-unicas-datencio-integral-a-les-malalties-minoritaries-pediatriques-a-espanya\/infografia_unicas_vf-2\/","alt":"","author":"12","description":"","caption":"","name":"infografia_unicas_vf-2","status":"inherit","uploaded_to":29407,"date":"2024-11-13 11:16:15","modified":"2024-11-13 11:16:26","menu_order":0,"mime_type":"application\/pdf","type":"application","subtype":"pdf","icon":"https:\/\/ticsalutsocial.atoom.space\/wp-includes\/images\/media\/document.png"}}]},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - 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